Neurodiversity

Going Silent for International Angelman Day

As many of you know, I decided to go silent for International Angelman Day on February 15th, and I used only my daughter’s PODD app to communicate during the day. Besides raising awareness and fundraising for Angelman Syndrome, I also wanted to share how difficult using AAC devices really are and hopefully gain some insight… Continue reading Going Silent for International Angelman Day

Neurodiversity

Stop Calling My Child “High Functioning”

“One of the most significant functions of language is quite beyond our conscious control. We might even say it controls us. It is the function of establishing our identities. Few things are closer to our personal, group, or national identities than is our language.” -Melvin J. Luthy The idea of language and the way words… Continue reading Stop Calling My Child “High Functioning”

Neurodiversity

Baptism for the Neurodiverse

This weekend will mark one year since Covey was baptized a member of The Church of Jesus Christ of Latter-day Saints. Many people, including members of our own family were confused why he would be baptized since he was born with the neuro-genetic condition Angelman Syndrome (AS). We were concerned because in our church it… Continue reading Baptism for the Neurodiverse